SOURCE: ALS Crowd
Before starting treatment, patients and their caregivers should meet with the financial counselor at the facility where they will be treated. Each hospital will have its own financial counselor within each specific clinic. The counselor will help determined coverage and estimate out of pocket costs. There may be restrictions on treatment options covered by Medicare and Medicaid. After you have met with the counselor, the resources below can help bridge financial gaps.
Financial planner Diahanna Valentine helped compile this list of helpful financial resources. To contact Diahanna for professional assistance, email her at dtvallentine@gmail.com.
Pharmaceutical Company Patient Assistance Programs
Amgen Assist 360 (1-800-28-AMGEN) (Kyprolis, Xgeva, Neupogen, Neulasta)
BMS Access Support (1-800-861-0048) (Empliciti)
Celgene Patient Support (1-800-931-8691, EXT 4077) (Revlimid, Pomalyst, Thalomid)
Genentech (1-888-941-3331) (Venclexta)
Janssen (800-609-1083) (Doxil, Darzalex)
Novartis Patient Assistance (1-800-245-5356) (Farydak, Zometa)
Sanofi Genzyme Care Assist Patient Program (1-833-930-2273) (Sarclisa/isatuximab)
Other Patient Assistance Programs
A.L.S. Family Charitable Foundation
Help for Single Mothers Paying Bills
National Organization for Rare Disorders
Patient Access Network Foundation
Patient Advocate Foundation Co-Pay Relief Program
Ronald McDonald House Charities
Basic Living Expenses
Child Care Expenses
A.L.S. Family Charitable Foundation
Equipment / Supplies Expenses
Government Assistance
Applying for Social Security Benefits
Centers for Medicare & Medicaid Services
Eligibility.com (Medicare Resources)
Social Security Administration
Social Security Disability Resource Center
U.S. Department of Veterans Affairs
Home Health Care Assistance
National Association for Home Care & Hospice
Insurance Premium Expenses
Fifth Season Financial Assistance
HealthWell Foundation (diagnosis-specific)
Patient Advocate Foundation Co-Pay Relief
Legal Issues
Disability Rights Legal Center
National Health Law Program(links to assistance programs)
Social Security Disability Resource Center
Medical Care Expenses
Fifth Season Financial Assistance
Foundation for Heath Coverage Education
Patient Access Network Foundation
Prescription Expenses
Foundation for Health Coverage Education
Patient Access Network Foundation
Patient Advocate Foundation Co-Pay Relief
Travel Assistance
National Patient Travel Center
Helpful Resources
National Amyotrophic Lateral Sclerosis (ALS) Registry
National Institute of Neurological Disorders & Stroke (NINDS)
ALS and Social Security Disability
