Medical Financial Resources

SOURCE: ALS Crowd

Before starting treatment, patients and their caregivers should meet with the financial counselor at the facility where they will be treated. Each hospital will have its own financial counselor within each specific clinic. The counselor will help determined coverage and estimate out of pocket costs. There may be restrictions on treatment options covered by Medicare and Medicaid. After you have met with the counselor, the resources below can help bridge financial gaps.

Financial planner Diahanna Valentine helped compile this list of helpful financial resources. To contact Diahanna for professional assistance, email her at dtvallentine@gmail.com.

Pharmaceutical Company Patient Assistance Programs

Amgen Assist 360 (1-800-28-AMGEN) (Kyprolis, Xgeva, Neupogen, Neulasta)

BMS Access Support (1-800-861-0048) (Empliciti)

Celgene Patient Support (1-800-931-8691, EXT 4077) (Revlimid, Pomalyst, Thalomid)

Genentech (1-888-941-3331) (Venclexta)

Janssen (800-609-1083) (Doxil, Darzalex)

Novartis Patient Assistance (1-800-245-5356) (Farydak, Zometa)

Sanofi Genzyme Care Assist Patient Program (1-833-930-2273) (Sarclisa/isatuximab)

Other Patient Assistance Programs

A.L.S. Family Charitable Foundation

Compassionate Care ALS

HealthWell Foundation

Help for Single Mothers Paying Bills

Patient Financial Aid

The Max Foundation

National Organization for Rare Disorders

NeedyMeds

Patient Access Network Foundation

Patient Advocate Foundation

Patient Advocate Foundation Co-Pay Relief Program

Ronald McDonald House Charities

Basic Living Expenses

Compassionate Care ALS

American Life Fund

Child Care Expenses

A.L.S. Family Charitable Foundation

Family Reach Foundation

Equipment / Supplies Expenses

St. Peters Health Partners

Government Assistance

Applying for Social Security Benefits

Benefits.gov

Centers for Medicare & Medicaid Services

Eligibility.com (Medicare Resources)

Legal Services Corporation

Social Security Administration

Social Security Disability Resource Center

U.S. Department of Veterans Affairs

Home Health Care Assistance

ALS Residence Initiative

National Association for Home Care & Hospice

Team Gleason pALS Resource
 

Insurance Premium Expenses

American Life Fund

Fifth Season Financial Assistance

HealthWell Foundation (diagnosis-specific)

Patient Advocate Foundation Co-Pay Relief

Patient Services, Inc

Legal Issues

American Bar Association

Disability Rights Legal Center

LawHelp.org

Legal Services Corporation

National Health Law Program(links to assistance programs)

Patient Advocate Foundation

Social Security Disability Resource Center

Medical Care Expenses

St. Peters Health Partners

American Life Fund

Be the Match

Fifth Season Financial Assistance

Foundation for Heath Coverage Education

Patient Access Network Foundation

Patient Advocate Foundation

Prescription Expenses

Foundation for Health Coverage Education

GoodDays

HealthWell Foundation

Needy Meds

Patient Access Network Foundation

Patient Advocate Foundation Co-Pay Relief

RxAssist

RxHope

Together Rx Access

Travel Assistance

Angel Flight

The Air Care Alliance

Air Charity Network

Angel Airline Samaritans

Angel Flight Central

Chai Lifeline

Corporate Angel Network

Family Reach Foundation

Lifeline Pilots

Mercy Medical Angels

National Patient Travel Center

Veterans Airlife Command

Helpful Resources

Active Clinical Trials

National Amyotrophic Lateral Sclerosis (ALS) Registry

National Institute of Neurological Disorders & Stroke (NINDS)

PatientsLikeMe

ALS and Medicare

ALS and Social Security Disability

COVID-19 Resources